Showing posts with label general disability. Show all posts
Showing posts with label general disability. Show all posts

Wednesday, August 21, 2013

Will the Real Service Dog Please Stand Up?

Canine Companions for Independence, the nation's largest breeder/trainer/distributor of service dogs, has issued a petition to the Justice Dept- calling for the outlaw of false service dog vests and certificates.

Apparently in another one of those "ethically questionable things you didn't know people did til the Internet came along" there are people out there selling these items, and perhaps dogs that aren't properly trained to go with them. So, being disabled is cool now? Not so much- but being able to take your dog places otherwise not allowed is- or at least more convenient for you.

In addition to dishonesty, this misuse of service dog disguises for regular pets jeopardizes the inclusion of service dogs in public spaces. People with disabilities have fought long and hard for public accommodations and we still struggle with defending and extending the rights we have. Currently users of service dogs are not required to carry documentation (though other types of service animals are) but that may become restricted if there is more suspicion of the animals' status.
Potentially this could also lead to folks who need service dogs getting ones that are not properly trained.

So- go sign the petition!

Tuesday, August 14, 2012

Siblings Matter, Too

I was looking around the Twin Cities Arc website today and was noticing all the programming and other resources they had for siblings of individuals with disabilities.  All too often, brothers and sisters feel overlooked by their parents or others, stigmatized by their association with disability and isolated from others such siblings (as are people with disabilities)

Though I had heard of  "Sibshops" offered by the Autism Society, I hadn't realized that they have been going on for 30 years- my entire life!
It's strange, I used to not see myself as a sister of a brother with special needs- since they were similar to my own. I remember my dad exclaiming "Mariah, he's autistic!" when I grew impatient with my brother. Autistic people all have different  traits & issues we face, so sometimes when another autistic/Aspie's behavior differs from one's own it can be hard to understand.  My brother has some challenges that I do not, so does Dan's (my fiance's) younger brother. For example, I've had more problems with anxiety, and he has more trouble with taking the initiative (executive function).  Dan learned to read at 3 or so and was very verbal, but his brother had more difficulty learning to talk and read.
Plus little brothers are just annoying in general!

I have another friend who is on the spectrum, and also has Tourette's. She has struggled a lot getting through school and making her way into adulthood, but has a college degree, and has held a job and been married for years. Her older brother has the same labels but has never been able to do any of these things for long periods of time. His emotional problems are a lot more extreme.
Because of these factors I think Sibshops could certainly be of benefit to siblings that have disabilities themselves, particularly if they have milder conditions.


Thursday, August 9, 2012

Book Review: Beyond Ramps

In Beyond Ramps, Marta Russell gives an excellent critique of disability policy & cultural attitudes in the American political & economic system. She shows how inadequate the Americans with Disabilities Act is in broadening opportunities and inclusion of people with disabilities in mainstream society. There is not enough of a push for businesses to hire people with disabilities, and there was too much compromise on not putting an "undue burden" on businesses to make their buildings accessible.

Russell also covers issues of bio-ethics, the history and current practices of eugenics & euthanasia. She gives some terrible examples of people who were put to death against their will, by people who thought they knew best. Though I do have to disagree with her on the Terry Schiavo case- doctors were almost all agreed that she was beyond help, not conscious at all, and really just artificially being kept alive. Really, it's a big example of why we all need to write living wills. There is a lot more awareness & encouragement of writing living wills by health care professionals now.

Russell also challenges us- what is the "perfect baby" anyway? Where do we draw the line as far as parents choosing what traits their unborn children have? Are we loosing important parts of the human condition or playing God by aborting these embryos or screening out "bad" genes?

How much is the pro-choice movement quietly supporting selective abortion as a parent's choice? (Though she does overall support a women's right to choose) Lots of disturbing things to consider, both on an individual and societal level.

Keep in mind, however that this book is now 14 years old- Clinton was president at the time, and so the statistics and policies are now quite different. I don't have all the information as to *how* they differ, but one thing I can say is that the tides have turned a lot regarding nursing homes vs. Personal Care Attendants. During the 2000's it became realized that PCAs were cheaper, and better for the people involved, and so there has been a strong shift in that direction, though funding for them is often not enough.
I also thought she was too harshly critical of nonprofits. I think non-profits and charities can be a good *supplement* to government aid, but they definitely cannot replace them, and I agree we can't just depend on people to donate to them.

I learned a lot from this book, and it often challenged my views, and deepened my understanding of disability rights issues. I hope it will for you too!